Hello Again!
Yesterday my daughter had her first Remicade infusion. She had no bad reactions and tolerated it very well. I think the hardest part was just getting the IV in! I am so glad she didn't react badly to it! After the treatment, she was so hungry that she ate 2 grilled cheese sandwiches! That is the most I have seen her eat at once in over 2 weeks. I am so happy!
I also don't think we would have made it through this without the support of family and friends. I know everyone's good thoughts and prayers helped us through and will always be grateful. I had also turned to the support of an online community called My Crohn's and Colitis Team. Out of all the support forums that I have been to, this is, by far, the best! From my first post at this site, I have felt an overwhelming support of kindness and caring and these people are complete strangers! I find that very fascinating! To know that people from all areas of the US and even Canada can provide comfort to you by a small gesture or words of encouragement is so wonderful. It made me feel good and hopeful that my daughter will find some normalcy in her life.
Her next infusion is in 2 weeks and am confident that it will go as well as the first time. We were approached by someone that works for the research department at the hospital to inform us that my daughter qualified to help with research into Crohn's disease and find a possible cure for the future. This is all due to her being so young. It makes it even more interesting that neither my husband or I have Crohn's and no one in our families do. However, as stated before, auto-immune disorders do run in my side of the family......bummer! In any case, all it takes is a blood test from anyone willing to participate and no personal information will be indicated on anything. We will just be a number. This is the first time I wouldn't mind being "just a number." In any case, I still want to think about it.
The website below is for My Crohn's and Colitis Team. It is such a good site!
www.mycrohnsandcolitisteam.com
Laugh and Love Life!
That is wonderful to hear! In fact, it makes me want my mommy to make me a grilled cheese sandwich or two! Glad to hear things are looking up! Be blessed!
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